Monday, June 13, 2022

St Judes Visit and ESY

Theo usually has his abdominal ultrasound and visit to St Judes every three months. We had to put it off a bit due to Theo's hip surgery. But on Monday, June 6th, the three of us headed to the Children's Hospital to see our friends in the ultrasound division and at St Judes.

[Theo was so brave during his ultrasound]

After the ultrasound we headed to St Judes. We had about 45 minutes before his appointment, so we decided to stop by the lab and see if Theo could get his bloodwork done for Neurology. The line was LONG and there was no way we were going to be able to get it in before his next appointment. We walked down the hall and entered the St Judes division. They asked us if we did his bloodwork yet, but I said they line was too long. They said that since they also want some bloodwork done, they could do all the drawing there. Sweet! After they got his blood we met with one of the Nurse Practitioners. She told us that his ultrasound looks great and they'll call us with the results of his bloodwork. Easy peasy! 

[Josh's Jeep has to have premium gas]


The dove eggs hatched and we have two baby birds!


Theo had seven seizures today.

The next morning (Tuesday, June 7th), Theo finally went back to school! He will be attending Extended School Year (ESY) for the next three weeks. He was so excited when he saw the bus pull up!


He had so much fun playing with Ms. Jess and his classmates at school!



[Blueberry yogurt!]

After school Theo took a four hour nap and then kept falling asleep during OT. Poor kid. He is still getting use to that new medication.


Theo had seven seizures today.

On Wednesday, June 8th, I put Theo on the bus and then watched the wildlife in my back yard. 

[Bunny!]

[The small bunny went into the trap, but was too small to trigger the door.]

[Mama and baby birds in the nest! They are getting so big!]

Theo had a great day at school, but he was super tired and fell asleep in the swing.


Theo had five seizures today.

On Thursday, June 9th, Theo was still sleepy, but had a great day at school.

[Theo with his CNA Ms. Jess]

[❤️]

[We are working on exposing him to cups]

[The nest is getting pretty full!]

That afternoon we went to Thrive for OT. Theo went on the swing and had a better session. Ms. Laura said he didn't seem as tired as he did on Tuesday.

Theo had six seizures today.

The next morning (Friday, June 10th), Theo headed back to ESY. He was more awake and had a great day playing!





There was a lot going on with our doves today too! The babies were in and out of the nest all morning and then I noticed that one of them was missing!



I found the smaller bird on the ground. I read that they will leave the nest and then stay in the area for a while, so I wasn't worried about him.


Later that afternoon the smaller bird went back to the nest to try and convince his bigger brother to go on an adventure.


Dad bird then showed up to have a chat with the boys.




They all ended up back in the nest for the night.


[Josh welding at work]

Thanks Josh for installing racks on top of my car! I'm excited to get my bike up there.



Using Google Maps, I found a walking trail around the neighborhood to our west. I decided that the next morning I would go on a bike ride over there and see if the area would be good for biking and running.

[And it was!]


Theo had nine seizures today.

The next morning (Saturday, June 11th), I went on a long bike ride. The walking path was pretty good and not too crowded. I think it'll be a great place to run outdoors.

The dove brothers were getter braver and braver!


[On the ground]

[Back in the nest]

Theo had four seizures today.

The next day (Sunday, June 12th), we spotted the baby birds on a walk along our fence with their dad. I don't know if we will see them again, but it's been fun watching them grow up!


Our flowers are looking great, but we are in for a HOT few days! I hope they all survive!



Theo had five seizures today. 

Overall it seems like Theo is getting use to his new medication and it's isn't making him as tired. It seems to be keeping his seizure numbers down too. I hope this trend continues!

Monday, June 6, 2022

LEEP Follow Up and Baby Doves

Monday, May 30th, was Memorial Day. Thank you to all those who fought and died for our freedoms. 


Josh drove home from his trip to Wisconsin. Theo and I met him in Naperville where he needed to drop off the rental car. I'm glad he had fun and made it home safely!

Theo had six seizures today.

Tuesday, May 31st, we had a quiet day at home. Theo was being super silly and was cracking up while watching "Shiny!"



Theo's feet are continuing to heal.


We've been encouraging Theo to army crawl. He had some muscle loss while he was in his cast, so it'll take some time to build those muscles up again.


WE HAVE DOVE BABIES!


TWO BABIES!


I've been trying to figure out the best way to transport my bike. My parents have a rack on the back of their car which can fold up and down, so you can get into the trunk without removing it. We started looking into something similar, but they are crazy expensive. We also figure that someday we will need to get a rear entry wheelchair adapted Traverse. So, we wouldn't be able to use the rear hitch once we get a new Traverse. SOOO now I'm thinking we should get a roof rack. Of course, I don't have crossbars, so we gotta get those first AND THEN get the roof rack. Ugh. It's always something.


Josh bought some "privacy trees" for our backyard. They are small now, but should grow a few feet a year!




BABY BUNNY!


Allergies are AWFUL, but I know my therapy has been working because I don't feel anywhere near as bad as I usually do!


Theo had four seizures today.

Wednesday, June 1st:


My roses are here!



I had my follow up with my OBGYN today. We went over the results of my LEEP and she is confident that they got all the bad cells this time. YAY! I need to come back for a Pap smear in 12 months. 

Theo had only 3 seizures today.

On Thursday, June 2nd, Josh bought a bunch of new knobs for our kitchen. He has always hated our jewel knobs. I think the plan silver ones look great!



Theo had six seizures today.

On Friday, June 3rd, we got our new washer and dryer delivered! I love them! 





The washer is on top of this pedestal washer. It's super handy if you just need to wash a couple of things (like Theo's clothes when he has a blowout).


Theo had five seizures today.

Saturday, June 4th, we went to Costco and bought Josh an Apple Watch. He's been using my old one for a week and really liked it.

[Almost healed]

Theo had six seizures today.

On Sunday, June 5th, Josh had a guys day and went to Axe Factor Throwing with a couple of his coworkers. I sounds like they had a great time!

[Josh took a few pictures of his buddies, but they didn't take any of him]


I thought it would be fun to see how far the nearest In-n-Out is... it's in Dallas. I just miss it so much!


I can't believe it's JUNE! At the end of the month we are going to see Brodee and my family in Ohio! AND next month I am going to Disney World with Luke, Andie, Porter, Kenna, and Andie's family! 

This year is going by SOOOO fast!