I can't believe Halloween week is already upon us! Christmas will be here in no time!
Monday, October 30th:
Theo headed to school, Josh went to work, and I ran some errands.
Ms. Jess said that Theo had a great day at school. He only had a few seizures and has been working on his communication.
[That's pretty cool!]
Theo had three observable seizures today.
HALLOWEEN!
This makes no sense to me. Come on Utah! Candy corn?! And what's up with the sour patch kids in Illinois?! It seems like all the kids here like Kit Kat bars.
I dressed Theo up as Harry Potter for Halloween. I love his Max Goofy costume, but the jeans are a little tight 🙃
After school I took Theo to PT/OT and then to The Legacy Ranch for ridding lessons with Sherman. They tried a new saddle and Theo did really well! He was so relaxed that it looked like he was falling asleep.
Our town trick-or-treating times are from 4-7 PM. So, before I left to pick up Theo from school I put our two huge baskets of candy and a sign that said, "Happy Halloween! Please take one!"
Theo and I got home at 5:45 PM and the baskets were almost empty! I put out one more full basket and split my time between watching the door and Theo.
I had to get out my lightsaber a few times when some kids tried to take more than a few pieces 🤣 Even though it had snowed and it was windy, there were just as many kids as last year! These kids are tough and nothing will stop them from getting free candy!
At 7:15 PM I brought in the rest of the candy (there were only a few pieces), took down the Halloween decorations, and put out my Fall/Thanksgiving decorations. The Christmas/winter decorations will come out in a week or so.
"You serious, Clark?"
Theo had one observable seizure today.
Wednesday, November 1st:
The next morning Theo and I drove down to the OSF Children's Hospital to see Theo's GI Specialist, Dr. M. We talked about Theo's most recent acid reflux flare. I told her it seems like his reflux and tummy issues get a lot worse during the fall, during the spring, and anytime he is on antibiotics. I told her that Pulmonology prescribed Theo some new allergy meds in the hopes that they will clear up all the mucus and that will stop the reflux. Dr. M agrees that the post nasal drip and the mucus is probably the biggest culprit right now and we need to wait for the meds to stat working. She felt Theo's stomach and said he feels like he is a little constipated and she wrote a script for an x-ray. At the end of the appointment she said that she was moving to Texas and Theo would be seeing another doctor moving forward. I'm so sad. We've been seeing Dr. M since Theo got his ng-tube and she's one of my favorite doctors. She actually listens and is super smart. We are really going to miss her!
After we said goodbye to Dr. M we headed downstairs to get an x-ray. The tech asked me if I wanted to take a look at the x-ray. Of course I did! I'm no pro, but I've seen a lot of x-rays of Theo. I could see that there was some gas a poop in his intestines. Dr. M saw the same thing and she told me to have Theo do a cleanse this weekend. Oh poop!
Josh has been working really hard at work and the station is coming together nicely! We are hoping he will be done with this project by the beginning of December and then he can have a nice break for the winter.
[Josh was trying to come home, but his escape was blocked]
Theo had three observable seizures today.
Thursday, November 2nd:
The next morning Theo was in a MOOD! I finally got him to calm down by putting him in his wheelchair and going for a walk around the house while we waited for the bus to arrive.
I was worried that Theo would be super crabby at school, but Ms. Jess said he did a good job. He even ate half of his food pouch!
[Working on his communication pad]
After school Theo went to OT and had a great session with Ms. Laura.
Theo had five observable seizures today.
Friday, November 3rd:
Theo had another good day at school! After school I took him to PT and then Josh and I took him to Walgreens to get his COVID shot. Our goal is to keep Theo out of the hospital and off of steroids and antibiotics this winter
Theo did his cleanse and Josh and I spent the weekend cleaning up his cleanse. It's a huge pain, but hopefully this will help get all that crap out of his stomach, which should help with the acid reflux.
Three observable seizures on Saturday and Sunday.
This is insanely concerning:
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