Sleep Study

Monday, September 18th:

Theo went to school, Josh went to work, and I had some errands to run 🙂 Sounds like a pretty typical day around here!

Theo rode the bus home and after Josh got done with work we had a Zoom with our Wish Coordinator, Maddi, from Make-A-Wish. They don't do reimbursements for vans or construction projects, which were our first two thoughts. We talked about a few different wish options, but we weren't sure what to wish for. Maddi said that was fine and we could think about it some more and get back to her. 

Theo had five observable seizures today.

Tuesday, September 19th:

It was a rainy day, but that didn't stop Theo from demanding we go on a walk before the bus came. I took him into the garage and we walked around in there for a few minutes before the bus came.

At school Theo went in his stander for 30 minutes!

He worked so hard! After school I took him to PT/OT and the therapists noticed that his right quads were a little tender. Perhaps from all the standing he did at school. They suggested a warm pad and some vibrations on his mat would help.

[Theo loves his vibrating mat]

Theo had nine observable seizures today.

Wednesday, September 20th:

Since they are short a couple welding inspectors at work, Josh has been filling in. It's definitely a lot of work to be a welding inspector AND Chief Inspector, but it's nice to put that CWI certificate to work!

[Fancy!]

Theo had another great day at school!

Theo had eight observable seizures today.

Thursday, September 21st:

Theo went to school and was "naughty." Ms Jess told me that he kept getting jealous of her helping some of the other kids. Anytime we walked away from him he would throw his iPad on the floor. She had to take his iPad away for a while, since he was not behaving.

After school I took Theo to OT.

After Josh got home from work the three of us headed to Peoria for the night. I dropped Theo and Josh off at the sleep clinic and then I headed to the Ronald McDonald House to get some rest.

My room was Wizard of Oz themed. Cute, huh?!

We knew Theo would have a hard time with the sleep study. It starts at 8:00 PM which is way past Theo's bedtime. Trying to put electrodes all over a kid that is over-tired is rough.

[Pouting]

Josh said he eventually settled down and and went to sleep. That gave the technician a chance to get the rest of the electrodes on. He slept through the night and we should learn the results when we see Pulmonology in October.

Theo had seven observable seizures today.

Friday, September 22nd:

I got up early the next morning and headed back to the sleep clinic. The guys were ready for their 6:00 AM pick up and they seemed a little tired. I drove home while Josh and Theo were able to catch up on some sleep.

After we got home we gave Theo a bath and then I took him to school while Josh went to work.

Ms Jess said that Theo had a great day, but he was a little tired and had 18 seizures at school. I think it was probably the combination of being tired and over stimulated.

After Josh got home from work we all headed to Walgreens so Josh and I could get our updated COVID shots. I definitely want to be extra protected before I travel next week!

Weekend:

Theo must have been so tired because he went to bed at 7:00 PM and slept in until 6:30 AM! YAY!

Josh worked on Saturday, but was able to be home on Sunday so we could watch both of our teams WIN! 

We bought tickets for the Packers vs Chargers game in November at Lambeau Field. It should be a fun game! And we are sitting in the second row on the visitor side, so maybe I'll get a high-five from Herbert!

[Got my cold weather Chargers gear!]