US ACCESS BOARD:
The US Access Board meets only a few times a year and Changing Spaces really wanted to get "Adult Changing Tables" on their agenda. So, we started a letter writing campaign!
Here's some info about who the US Access Board is and what they do:
If we can get the US Access Board to rule that adult-sized changing stations should be put unto public restrooms, it would become a mandated accessibility feature under federal guidelines (like ramps, elevators, and accessible restrooms). That would be HUGE!
We posted all over social media and we got so many people to send in letters that the US Access Board responded!
They told us that our request wasn't successful for the October meeting. HOWEVER, they will take our input into consideration and they will discuss changing tables at their next closed meeting. I want to thank everyone who sent in letters! We really appreciate your help!
TRAVEL:
The Chicago Mayor's Office and the CDA announced a new improvement project (#ElevateT3) for O’Hare Terminal 3 in April. "This project will upgrade passenger amenities, improve security screening and airport operations, and expand accessibility for passengers with disabilities at Terminal 3."
I reached out to the ADA Coordinator who oversees O'Hare and Midway to see if they had plans to include a family restroom with a powered, height-adjustable, adult/universal changing table. O'Hare already has a great "Changing Places" restroom in Terminal 1, but they need at least one in each terminal! I'll keep you posted if I hear back from them!
SAMI'S LAW:
IDOT is working on installing adult changing station in a few of their highway rest stops. All of these locations are far to the south. There are two DOT rest areas that are currently closed for refurbishment between us and Peoria (where Theo's hospital and doctors are), but those two places aren't on their list. That's a bummer, but I'm glad they are moving forward with getting some adult changing tables installed.
VOGM Walk Your Way:
The Vein of Galen Malformation Support Network and VOGM.org had their Fifth Annual Walk Your Way Walkathon!
I asked our "PEOPLE FOR THEO" friends and family to print off the race day bib, take a picture, and post that picture on social media (between October 21st and 29th) using the following tags:
We had a lot of people participate by donating and/or posting pictures of them walking for Theo.
All money raised will go to help these amazing VOGM warriors!
Donations from:
Emily Ward & Kids
Jody & Rich Heaton
Tylyn & John Neilson
Karen Turk
Karen Stearns
Mom & Dad
Missy & Tyson & Kids
Thank you so much to everyone for posting pictures and for your very generous donations! I really do appreciate the love and support!
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