Peds Surgeon & Laker Trades

Monday, January 27th:

Theo headed off to school while I worked on training and researching for a couple of my jobs.

After school I took Theo to OT with Ms. Laura.

Theo had eight observable seizures today.

Tuesday, January 28th:

Theo and I went to Ottawa to see Dr. Robertson, Peds Surgeon. We see him once a year so he can check on Theo's g-tube. Theo has been dealing with more granulated tissue and his g-tube area is sometimes a little sore. Dr. Robertson checked out the g-tube area and was happy to see how it looked. He said that the size of the g-tube is good and that the granulated tissue is mild and partially skin covered. Once all the granulated tissue becomes skin covered it will not be a concern. Until then we can continue our current treatments. We will see him in one year.

After Dr. Robertson we went to see Ms. Cody for PT and then we went to see Sherman and his friends. Theo rode with Ms. Kaylin and they played Disney music for him. Theo did great and was very happy!

Wednesday, January 29th:

Theo had an "early out" today, so I only had a few hours to work out and get somethings done for work before he got home.

After school Ms. Jen came over for feeding/speech therapy. Theo did well with his food play, so we will continue to move forward with that!

Ryan, Luke, and I are staying on Tokyo Disney property for five nights during our trip. We'll stay the first night at the Disneyland Hotel, then two nights at MiraCosta, and then the final two nights at the Disneyland Hotel. I REALLY want to stay at the new Fantasy Springs hotel! It looks beautiful and it overlooks the new Fantasy Springs land at Disney Sea. Usually you can go and walk through the hotels at Disneyland or Disney World even if you aren't staying there. But this hotel is to popular, so they aren't allowing people who don't have a room booked to see the hotel. I'm checking daily to see if a room opens up, but I'm not holding my breath! I just want ONE night! 🤞🏻🤞🏻

Theo had four observable seizures today. 

Thursday, January 30th:

Theo went to school and I ran a bunch of errands. After school I took Theo to OT with Ms. Laura. 

[He's just so cute!]

Theo had ten observable seizures today including one that was 90 seconds long.

Friday, January 31st:

Theo went to school today and then we went to see Ms. Cody at PT. Theo has been working so hard on his head control and being "SO BIG" and "SUPER STRONG!" We are so proud of him!

I'm officially a Make-A-Wish volunteer!

Theo had nine observable seizures today.

Weekend:

I thought these were great! 🤣🤣

A crazy deal happened this weekend in the NBA! We traded AD to Dallas and got Luka! 🙌🏻🙌🏻 I love AD and I'll miss him, but I'm excited to see what Luka can do for us!

And it's Groundhog Day... again! Will we have an early spring? No one really knows!

Josh in Alaska:

Josh is still up on the North Slope, but he will be home soon! I feel likes he gets a boost of energy every time he sees the northern lights!

Polar Vortex & Garage Lift

Monday, January 20th:

Today it was extremely cold, Donald Trump was inaugurated as the 47th President, and it was Martin Luther King Jr. Day.

We ventured out a bit when we went to OT with Ms. Laura. The rest of the day we hung out at home and did some activities.

We are going back to food play for now. Theo CAN eat, he just WON'T. It's a control thing and it needs to be his idea. Hopefully he will want to feed himself at some point. 

[Only kid I know that would be mad to be snacking on Cool Whip]

Botox Day 7 - Neutral 

Botox Day 7 - Eyebrows raised

Botox Day 7 - Scowl

Theo had five observable seizures today.

Tuesday, January 21st:

We received an email last night that school is canceled due to the extreme cold. We also heard from the Legacy Ranch that it was too cold for the horses and riders in the barn, so Sherman was canceled too. 

[Too cold!]

Botox Day 8 - Neutral 

Botox Day 8 - Eyebrows raised

Botox Day 8 - Scowl

At 10:00 AM we jumped on the computer for office hours with Ms. Kate! It was good to see her and talk to her about Theo and his progress. She said that he likes to raise his hand in class and answer questions when she calls on him. She also said that he seems to be much happier, unless Ms. Jess is gone OR the therapists are trying to get him to do something.

Theo had seven observable seizures today.

Wednesday, January 22nd:

Getting a visa for China is a bit complicated. You have to fill out an application online and then visit the Chinese Consulate. I was nervous that I was going to fill out the application incorrectly or I would have a hard time getting an appointment at the Consulate. So I started doing some research and there are agencies out there (don't worry, they are legit) that you pay and they do all the hard work for you. I paid one of these services, fill out the official application on the Chinese Consulate website, and sent the agency my passport. They will visit the Consulate on my behalf, check over my application, and get the Visa for me. 

My only hiccup during the Visa process was getting a picture that was good enough for the application. 

Soooo.... today I went on an adventure to Walgreens. I needed a passport quality photo for my China Visa. I went to Walgreens and got a photo taken. They sent me the digital file and I tried to upload it to the application, BUT the background wasn't white enough. You gotta be kidding me. So, I called Walgreens and talked to the lady that took my photo. She said she could make the background whiter, BUT I would have to come in and return my other photo and buy the new one. Alright. So I went back to Walgreens and bought the photo with the whiter background. After I came home I tried to upload it to my application and held my breath... it worked! YAY!

Luke started his application today too, so hopefully we will both have our Visas in a few weeks *fingers crossed*

After school Theo had feeding/speech therapy with Ms. Jen and Ms. Jeannine Zoomed in.

Theo had nine observable seizures today. 

Thursday, January 23rd:

I sent Theo off to school and then I got to work cleaning out the garage because LifeWay Mobility was coming over to install the garage lift!

Before

Before - I had to move everything away from the door because they are going to build a platform.

The installer came over and worked hard all day. He built the platform and installed most of the lift, but he needed a few more hours to finish. 

In Progress

Theo had 18 observable seizures today including ones that were 60, 73, and 101 seconds long.

Friday, January 24th:

After I sent Theo off to school the LifeWay Mobility installer came back to finish his job. Everything looks great, but we can't use the lift until after the electrician does his part and then the inspector approves it. 

After

Fits with the van!

Theo had 8 observable seizures today including one that was just shy of three minutes.

Saturday, January 25th:

Ms. Jess and her friend, Milto, came over on Saturday to hang out with Theo, while I went to run some errands. Theo had a great time with them!

Also on Saturday, an electrician from LifeWay Mobility came over to do the electrical work for the garage lift. 

I'm glad it's all installed, but we can't use the lift until the Inspector comes and turns it on. I hope it doesn't take too long!

Botox Day 13 - Neutral 

Botox Day 13 - Eyebrows raised 

Botox Day 13 - Scowl

It's been almost two weeks since I got the Botox and it's pretty safe to say it's not my thing. Here are my before and afters:

Why is my right eyebrow so much higher than my left? 🤔 

I don't like having my facial expressions be limited. It just feels kinda strange to me.

[Theo working on food play]

Josh is still doing really well in Alaska! It was actually warmer up there at the beginning of the week than it was down here! Pretty wild! We miss him so much!

I'm so old 🤣🤣