Thursday, November 26, 2020

Thanksgiving Week and Surgery Prep

We spend this week getting ready for Theo's surgery. On Monday, November 23rd, Theo had PT at home and then I had a Zoom Parent/Teacher Conference with Theo's teacher, Mrs. D. We discussed Theo and how much he has improved in just the last few weeks. Even though Theo only spends about 30 minutes a day in Mrs. D's class, she still has so many nice things to say about him. Mrs. A, Theo's Speech Therapist, also hopped on the Zoom so we could talk about Theo's speech. He has been very chatty lately and his teachers and therapist are very happy about that. We also discussed the switch back to "remote learning" and how we are going to make that work with Theo's recovery. We decided that Mrs. D will continue to send us her videos and and we would pause activities for now. Once Theo is healed and up for it, we can resume the Zooms with his therapist and his homework activities.

On Tuesday, November 24th, I took Theo to OT. Due to increased restrictions due to COVID-19, our "therapy session review" that his OT gives me after therapy has to be done over the phone or via text message. This is done in order to limit exposure between me and his therapist. It just sucks because I love talking to Theo's therapist and I love hearing how his sessions are going. Hopefully Illinois can get this pandemic under control soon and we can get back to the previous mitigation tier.

[We got to OT early to I put Theo in the back on his pack-n-play mattress and vented him. It was cold, so I closed the door and jumped back in the car. Theo thought it was funny and just kept kicking his legs.] 

[Working hard with Laura]

After OT, we drove to the hospital in Ottawa so Theo could get his COVID-19 test. He's had it before, so we knew what to expect, but it still sucks to see him so upset.


Yes, we decorated for Christmas early and I have no regrets! 


How cute is my tree?!


Theo has been doing SO GOOD with his feeding therapy lately! He has been playing with his ball and ground up Fruit Loops. He licks his ball, rolls it in the Fruit Loops, and then licks the ball again. He's been getting some of the food in his mouth and he hasn't been gagging or freaking out about it! It's taken him TWO YEARS to get to this point, but hopefully slow and steady will win the race! I just hope this hospital stay doesn't make him regress too much.


Theo has also learned to blow kisses this week! I've only been working with him for a couple of days!

On Wednesday, November 25th, I had my post-op check up from my LEEP surgery. After surgery my doctor told me to "take it easy" and I thought that meant for a couple of days. Turns out he meant for a couple of weeks. Oops! I started running and lifting weights a few days after my procedure because I was never in any pain. BUT after a few days of working out I started to bleed a little. My doctor checked me out, told me I wasn't allowed to run for two more weeks, and we scheduled a follow up in six months. 

That night we cut Theo's hair in preparation for his surgery on Friday. No offense, but Neurosurgeons are REALLY bad at cutting hair!



He looks like Uncle Fester, but I still love him!




Before we knew Theo was going to have surgery, I went ahead and ordered three pies from our favorite bakery in Indiana, Marilyn's Bakery, for Thanksgiving. I even though we got the small sized ones, I had planned on eating them over a few days time. After Theo's surgery was scheduled for the day after Thanksgiving, I knew that our plans would need to change. 


On Thanksgiving morning I headed to Indiana so that I could be at the bakery right when they opened at 8:00 AM. I arrived 10 minutes early and there was already a line! I picked up the pies and then drove 75 minutes home. We heated up the Apple Crumb and Rhubarb pies in the oven and we enjoyed some pie a la mode for breakfast! 


[I ordered three small pies, but they ran out of the small apple crumb, so they gave me a large! We will definitely not be able to eat these today!]

We FaceTime-ed with my family for a few minutes which was fun! We got a nice tour of Luke and Andie's place by Porter, watched Dane open his birthday presents, and Luke lead a family prayer for Theo.

For lunch we had mashed potatoes with gravy and yes, more pies!




For dinner we again had more mashed potatoes and pies!

[Apple pie and football]

[Josh cut his hair to match Theo]

We then packed up our hospital bags and headed down to the hotel in Peoria. Theo's check in time for surgery is 5:00 AM and it's a two hour drive from home. Staying in a hotel with Theo is not idea, he doesn't sleep well and neither do we, but it's better than leaving home at 2:45 AM.

We arrived in Peoria, checked into our hotel, got Theo to bed, and enjoyed our final (AND BEST) pie: French Silk!

I hope you all had a very safe and happy Thanksgiving!


[I sent this to Josh 🤣🤣]

Monday, November 23, 2020

Last Week of In-Person School, Labs for Theo, and Christmas Family Photos

This pandemic is not going away anytime soon and numbers in IL (and all around the country) are going in the wrong direction. So, our Governor has decided to take us back to "Tier 3." Our local school district also decided that this would be a good time to move all students to remote learning. They are hoping to start back up in person in January, but I honestly can't see us going back until the spring time. It's okay though, gotta be safe!



[PT at home with Ms. Becca]

[All ready for Zoom "Cow Corral"]


[Theo laughing at OT]


[Baby Yoda standing by to help!]

[Theo playing with ground up Fruit Loops]

Since it was the last week that Theo would be seeing his teachers, aids, and therapist in person before the new year, we decided it would be a good idea to get their Christmas presents to them early. I ran to Target and got 11 bags, 22 Reese's Christmas Trees, 22 Ghirardelli chocolates, 11 Lindt chocolates, 11 chocolate covered pretzels, and 11 gift cards to Target. Who doesn't like chocolate and Target?! And yes, Theo has 11 teachers, therapist, and aid just at school! This doesn't even include his private therapist!




[This shirt was sent to Theo from his friends at VOGM.org]

At 5:00 PM on November 20th, Illinois went back to "Tier 3."



[Let's be smart]

Wear a mask please! AND go watch The Mandalorian if you haven't yet! This is the way!








Our next Willrow Hood?! I wonder how many people will cosplay this guy at the next Star Wars Celebration.


On Saturday, November 21st, Josh, Theo, and I headed to the OSF St Elizabeth in Ottawa so Theo could get his labs and EKG in preparation for his surgery on Friday.

Theo was very brave during his blood draw, but was VERY upset with the tech started putting the stickers on him for the EKG.



He made it through and we will go back on Tuesday for Theo's COVID test. 


On Sunday, November 22nd, we decided to try and get some cute Christmas family photos! I don't know if Theo will be up for photos after his surgery, so we decided to try to get them done before. Theo made things a little difficult, but that's okay.




[Classic Theo side-eye glare]

[Having a chat while dad sets up the camera]

["My head"]

I think we managed to get a few good ones:


[Theo loves to wave]