Studying, Working, and Preparing

The week leading up to Halloween weekend was a busy one. Josh was studying A LOT and getting ready to head down to Georgia for his CWI class. I was getting ready for my parents to come and visit. And Theo was staying busying with school and therapy.

Traveling with a child that relies heavily on their wheelchair is very hard. I've heard horror stories about wheelchairs getting damaged or lost. I've been researching on all of the Special Needs FB groups and I thought that getting a bag for the wheelchair would help solve a lot of these problems. At least that way if a wheel pops off the wheel will still be in the bag with the rest of the wheelchair. AND THEN I saw a story about a child that had the same wheelchair and wheelchair bag as Theo (see picture below) and it was mistaken for golf clubs and was sent to baggage claim instead of going to the jet bridge to be reunited with the owner. UGH! So, I talked to Theo's PT and we decided it would be a good idea to buy a bunch of patches and then she would sew them onto the bag. 

Hopefully this will help people more easily identify what is in the wheelchair bag. Wish us luck!

James Michael Tyler (aka Gunther from FRIENDS) passed away on Sunday, October 24th. My friend posted this and it made me tear up. He was such a great member of the FRIENDS cast!

Theo got his school pictures back! I just love them!

Josh has been putting in some long hours at work this week.

I've been trying to stay away from sweets, BUT Crumbl had a chocolate mud cookie and I couldn't resist!

My external hard drive has been acting up, so I bought a new one. I have over 51,000 photos on my hard drive. They are all organized and labeled. I would be devastated if anything happened to them. Don't worry, I have a second external hard drive that has everything on it and is stored safely in my fire box.

Theo has been working so hard at school and everyone is excited that he is waving and clapping on cue.

I love our red tree!

Theo was in a horrible mood, so I gave him Beat-Bo, but that didn't cheer him up.

I then put him in his bed for some "quiet time," but that didn't work either. You know what finally did the trick? Peekaboo Barn!

[Hope you all got your Christmas shopping done already!]

[🤣🤣]

HOA Drama and Walk Your Way for VOGM

This week was stupid busy and I am ready for a break! I attended (via Zoom) an HOA meeting for our properties in Orlando, Josh had to spend the night in a cheap motel because he had to be at work at 3:00 AM, I got my flu shot, Theo had a great week at school, I got my lashes filled, and we kicked off the second annual "Walk Your Way" on Sunday.

Theo has gotten in the habit of escaping from the padded area to the hardwood floor. I tried to block him, but he's too strong!

 

Our HOA failed to make quorum and we were not able to hold an election. Some people (none of whom ran themselves) were very upset about this. I think our current board is doing a fine job, so I'm not mad. The drama is just so entertaining. You'd think it was all a conspiracy!

I think Fall is finally here! 

Look at our tree!

Theo also likes to hang out between the padded area and the coffee table. And then he gazes at his toys and whines about how far away they are.

The Dodgers put up a good fight, but they were eliminated from the Playoffs this week. 

Josh is heading to Georgia in a week and he has been studying so hard!

I told Theo he looked cute and I wanted to take a picture of him. He was not into it!

Theo likes to steal diapers and smack them on the ground until they explode. It's quite and mess and he thinks it's hilarious!

Theo was so proud of himself for playing "PeekaBoo Barn" all by himself. 

Theo always has to have his ball and music close by. 

[Coming over to visit]

[I think he's bored with us]

Sunday, October 24th, kicked off the second annual "Walk Your Way" to raise awareness and funds for our VOGM family. That morning I ran 15 miles (one mile for every time Theo has been under anesthesia due to his brain aneurysm) to raise awareness for Theo, his fellow VOGM warriors, and all the angel warriors we have lost along the way. This aneurysm is dangerous and kills 1/3 of children who are diagnosed, another 1/3 live their lives with severe developmental issues, and the other 1/3 can have a good neurocognitive outcome.

Since there are only a handful of doctors around the world who are qualified to treat VOGM, it can make it very difficult for those who are less fortunate to get to a doctor and receive care. VOGM.org is raising money to aid those children. Through generous donations the organization has been able to get children from Uganda to doctors in Egypt to receive care and has been able to provide grants to those who need aid with lodging and travel.

Awareness is the key to survival and getting these kids and their families in touch with quality doctors is VOGM.org highest priority.

If you would like to join our group, People for Theo, please go here!

#PeopleForTheo
#VOGM
#VOGMWalkYourWay
#VeinofGalen
#VOGMAwareness 
#AVMAwareness 
#VeinofGalenMalformation
#VeinofGalenAneurysm

[I needed to harness the power of Rivs in order to run]

It was a hard run, but I made it!