MRI and Disney Hotels

Monday, April 13:

I flew home Monday night after a super fun trip to Vegas and Utah. It's always nice to be home, but there was a lot to catch up on!

My first issue to solve had to do with my own health insurance. I received a call from my allergist's office letting me know that (according to what they can find) my insurance hasn't been active since October 2025. I'm usually dealing with Theo's insurance drama and now I have my own. I sent Michelle ("My Personal Champion") at Cigna to let her know. She said she would look at it from her end. I also asked Josh to reach out to HR at d'Escoto to see if it was a problem on their end. I'm not lying when I say I am always on my phone! I spend so much time every week on hold with insurance companies, doctors offices, hospitals, etc. It's exhausting!

Look at this adorable post card that Theo got from my parents! 

[School art]

Tuesday, April 14th:

This morning a team from Generac showed up to install our new Generac Generator! We applied for a grant through DSCC to get it. Since Theo is on a medical waiver for Medicaid because he is dependent on technology, we were approved for the grant! It will turn on automatically if we use power and it doesn't require any maintenance on our end. It's nice to know that Theo's overnight feed pump, nebulizer, oscillating vest, cough assist, and suction machine will all continue to work if we lose power. AND Theo has medication and food that has to be refrigerated, so it's nice to not worry about those getting spoiled. 

After school we took Theo to The Legacy Ranch to see Sherman and his friends! Theo did great holding up his head and being super strong!

Wednesday, April 15th:

Happy Tax Day!

Happy 45th Anniversary to my Parents! 

Theo went to school today with Ms. Jess for a half day. This gave me enough time to workout and catch up on a few more work things, but then I got news that we were hiring a new employee at Northern Integrity! That creates more paperwork for me, BUT it's very exciting!

Thursday, April 16th:

Josh, Theo, and I got up early and headed into the city for Theo's sedated MRI at Lurie Children's Hospital. The MRI team was running a little behind and Theo got taken for his MRI about 2 hours behind schedule. Usually the MRI will take about an hour, but this one was closer to two hours! Theo hasn't had an MRI since February 6, 2023 when they were doing prep for his VNS surgery, so I understand they wanted to get in there and get some really good, updated photos.

Once Theo was done, in recovery, and awake, we were able to see him. He was a bit tired, but overall in a pretty good mood. We fed him and he held that all down, so we were discharged.

After I got home I checked the WDW website to see if our hotel dates for our family trip in June 2027 had been released yet. 

While I was in Utah I talked to Alysse (Andie's sister and our Disney travel agent) about when she thought the dates would be released. She didn't know, but she thought we had a few more months to go. 

To my surprise the dates had actually been released earlier that day! I got on the phone with Alysse and we were able to book most of the rooms I wanted!

We are going to be staying at Beach Club for three nights in a Two bedroom Suite - Club Access Level. I really wanted the Newport Suite, but that was sold out, but that's okay!

Beach Club has amazing pool, so I am excited to spend so much time there!

We are also going to spend three nights at the Grand Floridian in the Disney Suite - Club Level! I wanted this room so badly and we got it! 

We will then spend four nights at the Polynesian! I really wanted to spend two nights in the Bungalow and two nights in the Tower, but the Bungalows are sold out. We did manage to get one night in the Ambassador VP Suite - Club Level and three nights in the Tower in a Two bedroom villa with a theme park view! 

Thanks to Alysse for helping me book everything! I know it was a scramble, but she is a pro! Let me know if you need a travel agent for your Disneyland or Disney World trip! She's the BEST!

Friday, April 17th:

Theo went to school with Nurse Stephanie and they had a great day! After school Theo had PT with Ms. Becca and he worked really hard for her.

After Theo went to bed Josh and I watched the news because there was a line of storms coming in that had already dropped some tornados. 

I love spending my nights watching the news!

In the end, the storm was pretty intense, but we didn't have any damage around our neighborhood. Others were not as lucky!

Weekend:

Josh and I went to see the new Mario movie! It was really cute and a lot of fun!

The Lakers are hurting (Luka and Austin are both out for the foreseeable future), but they made it into the Playoffs! I am just hoping we don't get swept by the Rockets. But we won our first game, so we are off to a great start!

[Wild!]

On Sunday, Josh went golfing with some guys from work. He was nervous and excited for his first official golf outing! Besides the hail, it said it was a lot of fun!