Monday, October 26, 2020

First Week of School, COVID Test, and Walk Your Way for VOGM

Theo had his first day of in-person school on Monday, October 19th.

[Theo with his Star Wars backpack, Push Chair, and AFOs]


[Gotta wear that face shield]


[Classic "First Day of School" picture]

Theo goes to in-person school on Monday, Tuesday, Thursday, and Friday in the afternoon. Wednesday is remote for everyone, so they can deep clean the school. I love that Theo only has three kids in his class! Since he goes to school in the afternoon he usually has private therapy in the morning, but if he doesn't we still work hard!






I bought these skinny jean overalls for Theo a couple of years ago and they finally fit... kinda! They are so tight! They make him look so old!



[Fun with Ms. Becca]


[Waiting for school to start on Wednesday]


[Learning about body parts with Mr. Potato Head]

[Seriously guys, grow up and wear a mask]

On Friday, October 23rd, Theo and I drove to the hospital in Ottawa, so he could get a COVID test. The nice nurse had me climb in the backseat of the Traverse so I could hold Theo's head and arms. She was quick with the test, but it was a nasopharyngeal swab, so they aren't fun. Theo did fine though. He cried, but I had his Paci and music ready.


["Mom, that lady dressed in white tickled my nose!"]

[I think I bought the wrong size]

[My son won't eat food, but he will eat his Paci]

[Dodgers harnessing the power of the Mamba]

I’ve continued to run daily for Tommy Rivs, who is improving, but is still in the hospital fighting for his life. Please continue to send good vibes to him and his family as he battles cancer. 


#RunningForRivs

#RageOn

#RunForRivs

#RageForRivs

#DontGetDead

#BeatCancer

#TeamRivs


https://gf.me/u/yjnsnc


[Finally got my Rivs hat]



On October 25th, I also ran for my son to raise awareness for him and his fellow Vein of Galen Malformation warriors. I did a 10 mile run this morning and then we went for a family walk around the neighborhood. We are taking Theo to the hospital tomorrow morning for his yearly angiogram with Interventional Radiology. They will be checking on the blood flow in Theo’s brain, his aneurysm, and the fistula to the falx cerebri (which was found last year during his angiogram). Please send up those good vibes to him and his amazing team of doctors!


#VOGMWalkYourWay

#VOGM

#AVM

@VOGMSupportNetwork


https://vogm.org/walk-your-way-1





Monday, October 19, 2020

Day Off, Walk-In at MPC, and Last Week of E-Learning

How is Columbus Day still a thing?

I love Trevor's solution:

I know my blog is 99% Theo, but Josh is still around and working long hours. Oh, the life of a pipeliner!



This week was our last week of e-learning *knock on wood* for now. YAY! Theo is continuing to work hard and we are so excited for him to go to school and meet his new friends!



On October 13th, we had another "walk-in" at the school. Theo spent an hour with his one-on-one aid Tammy, his PT, and his vision therapist. 


[Theo was watching his Cow Corral and decided to sing along]

[Josh helping]


[It was "Orange Day" so we brought the pumpkins to show the class on Zoom]

[Theo got a little excited when playing with his smashed up Cheerios. I am perfectly fine with this!]

[Pumpkins!]

[More coloring!]



We have been working hard on getting Theo to roll to his right. It's crazy that no one can figure out why he freaks out so much. His PT, Becca, is working on making it fun! Roll to the right and get a kiss from his robot!


[Working on wearing his shield]

[Mom, I'm a serious artist]


Josh is in charge of dinner once a week (Saturday night). On October 17th, Josh made us some delicious surf-n-turf with homemade béarnaise sauce! Everything was soooo delicious!



We don't have crab crackers! Oops! We improvised and everything worked out fine 🙂



There is a delicious bakery right next to Theo's PT clinic that makes the BEST buckeyes I have ever had! MOUTH WATERING! Anyways, the owner wanted to retire and did so without selling the business. I was so sad when they closed their doors and I have been hunting for good buckeyes ever since. NO LUCK! UGH!

Well, a week ago the bakery was sold and re-opened! The new owners not only bought the bakery, but all of their original recipes INCLUDING the buckeyes! I told Josh and he swung by after work and brought me home ONE buckeye! I love him!


[Got my Rivs hat! I'm still running with Rivs six days a week!]

We decided to cut Theo's beautiful hair before his first day of school. I had mixed feelings, but it is so thick and hard to maintain!





Theo thought it was so funny to get "tickled" by the trimmers!



The Dodgers are going back to the World Series! My dad is a huge fan. I'm more of an Angels fan, but I can root for both. GO DODGERS!



[YEP!]



[If you don't get this, you need to go and watch The Mandalorian on Disney Plus]


I voted. You should too.