Last Week of ESY

This was Theo's final week of ESY. He just loves going to school and it looks like they had a great time at ESY. I'm very sad it's already over!

Monday, June 24th:

After Theo headed off on the bus I went to Costco and to run a bunch of errands. Theo and his friends had a fun time splashing in the pool and soaking in the sun!

Tuesday, June 25th:

I sent Theo off to school on the bus, but a couple hours later I got a call from the school. Theo was having a lot of seizures and he told Ms. Jess that he wasn't feeling well. He was crying a lot and they just couldn't calm him down.

[Hiding]

When I arrived at the school I asked Theo if he wanted to go home. He signed "yes." I told him that we can go home, but he needs to poop and take a nap. He signed "yes" again. After we got home he did poop and then he took a long nap. I'm sure his tummy was the cause of his discomfort. Poor guy!

[Cuddles with Puppy]

After Theo's nap we took him to see Sherman and all the ladies at the Legacy Ranch. Theo wanted to show off so he lifted his head up super strong! 

[Go Theo!]

Wednesday, June 26th:

Theo headed off to school and I went to see my doctor for a yearly check up. Fun. After that I went to Crumbl and bought a bunch of cookies for all the nice people at Theo's school.

Theo and his friends went on a walk to the local park where he played on the wheelchair swing! Ms. Jess said he had fun even though he's not smiling in the picture 🙂

I picked Theo up from school, delivered the cookies, and then took Theo to OT. We've been working on stretching and sharing. Theo is getting better at both, but it's a work in progress.

Thursday, June 27th:

Today was Theo's last day of ESY! 😭😭

I had a few more errands to run (annual bloodwork, allergy shots, etc) before Theo is home full time.

Thanks to Ms. Jess and the whole team at ESY! I know Theo had a great time!

At noon I jumped on Zoom to watch the National Council on Disability Board Meeting. It was very enlightening and I was blown away by the speakers. I loved hearing about what the board is proposing and how they are trying to make life better for those with disabilities.  

One of our chapter leads from Changing Spaces was able to make a comment at the end of the meeting. I really hope that the Board took what she said to heart.

That night we watched the Presidential Debate. Mo made bingo cards and I very much appreciate them!

[Yep...]

Friday, June 28th:

I took Theo to PT and then to get his bloodwork done. He was pretty upset, but the nurse was able to get him in two pokes, which is pretty good.

I don't understand this child:

Weekend:

On Saturday the Tour de France kicked off! Theo and I love watching all the Stages and rooting for our favorites! Hopefully we will get to see Mark Cavendish break the record for the most stage wins and cement his legacy as the greatest sprinter! We are also watching Jonas Vingegaard who won the last two years, but he got in a horrible bike crash just two months ago and spent two weeks in the hospital recovering from a punctured lung and broken bones. I'm glad he recovered and he will be fighting for the yellow jersey again this year!

Josh replaced the coil springs on his Jeep. He said it rides a lot better now!

Theo got new glasses! Isn't he so handsome?!

I started a countdown to help me remember when I can book all of the Disney stuff for our sibling trip next April. It's a bit crazy, but I'm organized and determined!

Third Week of ESY

Monday, June 17th:

Theo was VERY excited to go to school today. He loves getting on the bus and seeing all his friends!

After Theo got on the bus I jumped on a Zoom with one of the three National Organizers of the Changing Spaces Campaign, Christina. We were scheduled to chat for 30 minutes, but we ended up talking for 1.5 hours! She is very nice and has a ton of knowledge about advocating!

Ms. Jess did a photo shoot with Theo while he was at school. She got a lot of pretty cute pictures of him! 

["Teenager with attitude"]

[He has mixed feelings about bubbles]

Thanks Ms. Jess for the cute pictures! ❤️

Theo had eight observable seizures today.

Tuesday, June 18th:

It is insanely hot and humid this week! 

Theo gets on the bus at 7:30 AM and then I usually got water the plants. Today I watered the plants and pulled some weeds. I was only outside for 30 minutes, but I was dripping with sweat! EWW!

Theo came home from school on the bus and then I put him down for a quick nap. I love how he cuddles with his puppy. It's so sweet!

After his nap we went to PT and then to see Sherman and all Sherman's friends at The Legacy Ranch!

Theo had eight observable seizures today.

Wednesday, June 19th: 

Theo didn't have school today, so we hung out at home until we went to see Ms. Laura for OT.

That afternoon we had feeding/speech therapy with Ms. Jen and Ms. Jeannine Zoomed in.

In other news, the Lakers hired JJ Redick as their new head coach. I don't get it. But hopefully he'll do a great job!

Theo had 10 observable seizures today.

Thursday, June 20th:

Theo was very gassy this morning and I was only able to give him half of his breakfast because he kept gagging. While he was at school he told Ms. Jess (via his podbook) that his tummy hurt. She vented him and he was very gassy. I am glad that he was able to communicate with her!

Luke and I booked our two night stay at the Shanghai Disneyland Hotel! I can't believe we are less than a year away from our epic sibling trip!

Theo finished his third week of ESY!

Theo had seven observable seizures today and I had a migraine. I am starting to get them more frequently and this was my fifth one this year. UGH!

Weekend:

Our weekend starts on Friday because Theo has ESY Mondays to Thursdays 🙂

Josh had to pull two trucks out of a mud pit at work. He thought it was pretty funny!

Josh has been working long hours in the heat this week. He said they had to send one guy to the ER (he's okay). Be careful out there!

Because of the heat and humidity we are getting some pretty intense storms. Luckily, by the time these storms got to us they were not as bad. But the northern suburbs got some gnarly wind and rain!

I also learned this weekend that Sami's Law (SB 1089) was officially sent to Governor Pritzker's office for him to sign! I am going to call his office on Monday and see when he will be signing it. I'd love to be there!