This week was Theo's final week of ESY. I think we were both pretty bummed about it. Theo LOVES going to school on the bus and playing with all his friends. When I tell him he is going to school on the bus he kicks his legs and waves! It's adorable! I also loved being able to put him on the bus at 7:35 AM and then heading out on a long bike ride before it gets too hot.
After school Theo had PT and I listened into a LONG board meeting for our condo HOA in Florida.
Theo had four seizures today.
Tuesday, June 21st, was a HOT day with temperatures hitting 100 and the heat index being over 105. Luckily, we only had to be outside for a few minutes to get Theo on and off the bus, but that was enough to make us both sweat!
[My beautiful flowers]
While Theo was at school I listened into the Master Board HOA meeting for our Florida properties. It was another insanely long meeting, but it's good to be up to date on issues, right?
That afternoon Theo had OT at Thrive and the therapist mentioned how much more alert he has been.
Theo had six seizures today.
The next morning (June 22nd) we were up by 5:30 AM and I was able to watch the Kenobi finale while I got Theo ready for school. I can't say enough how much I loved this series! If you are a fan of the movies you will definitely enjoy it!
And he is spoiled and loves to cuddle with Ms. Jess his CNA!
That afternoon Theo had PT, Feeding Therapy, and a Zoom with his dietician. Theo is 50.8 lbs and 45" tall! So, we decided to reduce his food a bit and hope he plateaus. He is getting really heavy to lift and carry.
Theo had seven seizures today.
Thursday, June 23rd, was a bit cooler, so Theo played outside at school.
[PT at ESY]
That afternoon Theo had OT and I ordered macarons for all of Theo's teachers, aids, nurses, therapist, bus drivers, and bus aids.
Theo only had three seizures today!
On Friday, June 24th, Theo took 168 macarons to school to share with his amazing helpers!
Theo's not much of a cuddler with me, but he LOVES to cuddle with Ms. Jess! She took such great care of him during school and we are excited for her to come and babysit Theo in the future.
[All the cuddles!]
[Whatever side you are on, this is very important to remember]
Josh has been working hard at work. He is still the Chief Inspector and enjoys the challenges that it brings.
Josh brought home some more rocks and built another path. I think they look great!
Theo had three seizures today.
On Saturday, June 25th, Josh, Theo, and I drove up to Schaumburg (by the O'Hare airport) to attend the Abilities Expo. We were interested in checking out the accessible cars and the home lift systems, but we had a lot of fun walking around and seeing all the different booths.
These lift systems are really cool. They can install ceiling tracks throughout your entire house, which makes it easier to lift and transport your loved one safely. Like I said before, Theo is over 50 lbs, so we will be needing a lift system pretty soon.
Theo only had TWO seizures today!
On Sunday, June 26th, I went for a bike ride and then we all went to Costco to walk around.
My skin is starting to peel and when I sweat it causes these bubbles to form. It's like sweat blisters and it's kinda gross.
Theo had five seizures today.
The next morning (June 27th), Theo and I headed to Ottawa. Our first stop was the lab at the hospital so Theo could get his blood drawn for Neurology. After that we went and saw his Pediatrician for a pre-op check up. Theo will be having his Bilateral Orchiopexy For Retractile Testis (done by Urology) AND Left Myringotomy And Ventilation Tubes Possible Bilateral Ventilation Tubes Adenoidectomy Possible Tonsillectomy (done by ENT) on July 14th. Theo really needs this procedure and we are hoping it doesn't get postponed again. When I went into Theo's room the other morning at 2:00 AM to give him his meds, I noticed that he had some blood in his ear. I don't know if this has to do with a tube falling out or if his ear drum was ruptured by fluid build up, but either way he needs this procedure.
[Blood draw]
[Power nap before seeing the doctor]
We had another consult for our laundry room make over today. Hopefully they will be able to finish by the end of July.
Theo had four seizures today.
June 28th is Election Day in Illinois! I sent in my mail in ballot so I'm good to go! Please get out and vote!
I spent a few hours today packing and then took Theo to get his first COVID shot and that afternoon he had OT.
He was so brave!
Theo and I are heading down to Ohio tomorrow morning, while Josh will drive down on Thursday and Brodee will fly in Thursday night.
[Got to take some buckeyes to the buckeyes!]
Theo had two seizures today.
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